Dana Scully - Z
@XFILES
25 May, 02:31
the coin is still in the air....
After 4 months
can't get a diagnosis for my husband
more test...
i was packing to move.
then i stopped packing
thinking i was staying
then i started packing again
then i stopped again...
now i am thinking to move forward with moving
regardless of my husband condition.
i have been waiting for the coin toss to come down.
its hard to watch because 1/2 the ppl in my neighborhood are selling their homes.
Limbo is not a good place to be right now.
After 4 months
can't get a diagnosis for my husband
more test...
i was packing to move.
then i stopped packing
thinking i was staying
then i started packing again
then i stopped again...
now i am thinking to move forward with moving
regardless of my husband condition.
i have been waiting for the coin toss to come down.
its hard to watch because 1/2 the ppl in my neighborhood are selling their homes.
Limbo is not a good place to be right now.
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25 May, 02:40
In response Dana Scully - Z to her Publication
If you want to, talk to me about his symptoms, test results. I have a knack for figuring out medical issues. I'm sorry no one has critically thought about what is going on. I am not a medical professional. But I might steer you in the right direction.
Do you have all of the test results? If not, get them.
Have you written a list of symptoms? If not, do that.
If he had the shot, then you'll need to think in a broader sense, not only side effects/symptoms. Think immune deficiency, etc.
People can have more than one thing wrong at a time. Keeping an open mind is important. Also, diet may be playing a role. Maybe not a big one, but that might be contributing.
Blessings, Dana (& husband).💙🙏
Do you have all of the test results? If not, get them.
Have you written a list of symptoms? If not, do that.
If he had the shot, then you'll need to think in a broader sense, not only side effects/symptoms. Think immune deficiency, etc.
People can have more than one thing wrong at a time. Keeping an open mind is important. Also, diet may be playing a role. Maybe not a big one, but that might be contributing.
Blessings, Dana (& husband).💙🙏
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Dana Scully - Z
@XFILES
25 May, 03:41
In response Photon 333 to her Publication
TY
that what we are waiting on.
test results
more CT
xrays..
ect..
2 week for referral approval
2 week for apt
inconclusive
do it again.
waiting on finding out about scaring on lungs 🫁
his oxygen drops
90 to 70
getting dressed in the morning
cant work
seeking assistance
no results yet.
No jab for either of us
but they did diagnose him for covid respiratory failure
and treated him in the hosp with that bad stuff.
so we are trying to talk to
L&I
claim
cuz "covid" happened at work
or short term disability
the communication is horrible
if hubby is going to get worse
i didn't want to be living in a 24 foot trailer.
that what we are waiting on.
test results
more CT
xrays..
ect..
2 week for referral approval
2 week for apt
inconclusive
do it again.
waiting on finding out about scaring on lungs 🫁
his oxygen drops
90 to 70
getting dressed in the morning
cant work
seeking assistance
no results yet.
No jab for either of us
but they did diagnose him for covid respiratory failure
and treated him in the hosp with that bad stuff.
so we are trying to talk to
L&I
claim
cuz "covid" happened at work
or short term disability
the communication is horrible
if hubby is going to get worse
i didn't want to be living in a 24 foot trailer.
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Whatever doctor diagnosed the 90 to 70 % O2 drop should have already given him a prescription for oxygen. Then he could take that (or have it faxed) to a local oxygen medical supply company. Panasonic makes a good concentrator.
Does he take vitamin D, quercetin, zinc, etc.?
Why aren't they going straight to an MRI? That would be the most accurate way to determine what's going on with his lungs. Stupid doctors. They have testing protocols: X-ray first, then CT, then MRI. Useless.
Are you sure that Covid began the scarring? Treatments? Did he work in a field where there were risks for lung damage?
His ancestry might point to being prone to certain issues (i.e., sarcoidosis).
I hope he has a good internist that can pull all of this info together. Without more info, figuring this out is near to impossible this way. I wish you both the very best. 💙 Being a patient advocate is better done in person. You could try to find one.
Does he take vitamin D, quercetin, zinc, etc.?
Why aren't they going straight to an MRI? That would be the most accurate way to determine what's going on with his lungs. Stupid doctors. They have testing protocols: X-ray first, then CT, then MRI. Useless.
Are you sure that Covid began the scarring? Treatments? Did he work in a field where there were risks for lung damage?
His ancestry might point to being prone to certain issues (i.e., sarcoidosis).
I hope he has a good internist that can pull all of this info together. Without more info, figuring this out is near to impossible this way. I wish you both the very best. 💙 Being a patient advocate is better done in person. You could try to find one.
10:14 PM - May 25, 2022
In response Dana Scully - Z to her Publication
Only people mentioned by Photon in this post can reply
Dana Scully - Z
@XFILES
26 May, 02:27
In response Photon 333 to her Publication
yes thank you for the information
they have him on oxygen
whats taking time is each appointment
they are trying to figure out why he is not recovering
he had a 4 way bypass in 2020
then now "covid res. failure"
they see a "cloudy" area on his lung.
so either scaring from being a long time smoker?
or scaring from covid pneumonia?
they want to repeat a CT and chest xray.
and do a breathing test too.
june 8th then we will know more.
they have him on oxygen
whats taking time is each appointment
they are trying to figure out why he is not recovering
he had a 4 way bypass in 2020
then now "covid res. failure"
they see a "cloudy" area on his lung.
so either scaring from being a long time smoker?
or scaring from covid pneumonia?
they want to repeat a CT and chest xray.
and do a breathing test too.
june 8th then we will know more.
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26 May, 02:41
In response Dana Scully - Z to her Publication
They probably did this already, but did they check his CBC, ESR (erythrocyte sedimentation rate), and do blood cultures? Did they think to try an antibiotic like Biaxin, that is really good at lung infections?
His body could have an imbalance of good bacteria, which might be adding to the situation. Is he on antacids?
Checking immune helpers like thyroid, vitamin B12, vitamin D, etc. are always useful tests to do. Glad he's on oxygen! We can't clear toxins without oxygen, so that will help.
A sleep study and an echocardiogram are useful too. Anything that might impede proper breathing is good to check out. If he has apnea, the oxygen won't fix that. But O2 will help pulmonary hypertension (depends on what kind).
Sometimes it's useful just to talk about these things out loud. 💙
His body could have an imbalance of good bacteria, which might be adding to the situation. Is he on antacids?
Checking immune helpers like thyroid, vitamin B12, vitamin D, etc. are always useful tests to do. Glad he's on oxygen! We can't clear toxins without oxygen, so that will help.
A sleep study and an echocardiogram are useful too. Anything that might impede proper breathing is good to check out. If he has apnea, the oxygen won't fix that. But O2 will help pulmonary hypertension (depends on what kind).
Sometimes it's useful just to talk about these things out loud. 💙
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